Our Honorary Sister
Bella Kai Rutko, was born at 1:03pm on June
18, 2009. At 7lbs, 4oz., Bella was a healthy baby
girl. Her family grew anxious when they awaited
major milestones as Bella continued to grow.
On June 21, 2011, a blood test that was
conducted had now changed Bella’s life forever
as she tested positive for Rett Syndrome.
Currently, Bella can not walk unassisted, does
not talk, and uses a wheelchair to get around.
What Is Rett Syndrome?
Rett Syndrome is a random gene mutation
on the X chromosome. It is rare and affects
1 in 10,000 female births worldwide each
year. Rett is a neurodevelopmental disorder
that causes many different disabilities
including; learning, speech, sensory
problems, seizures, breathing difficulty,
cardiac function, and many more. Sadly,
there is no cure for this. Some events our
organization hosts include; Bella Bingo and
Bella Walk. Both of these events are held to
raise awareness and funds for Bella and Rett
Syndrome research.